Resources for Survivor Researchers

In this area, we are posting information on useful publications and other material  with  links. We prefer to share details of freely available material, but this is not always possible. Suggestions for material we can share are very welcome


Some Key Publications in Survivor Research

Jan Wallcraft, Jim Read and Angela Sweeney (2003) On Our Own Terms: Users and survivors of mental health services working together for support and change. The Sainsbury Centre for Mental Health. Available here.

Peter Beresford (2003) It’s Our Lives: A short theory of knowledge, distance and experience. Citizen Press in assoication with Shaping Our Lives. Available  here

Alison Faulkner (2004) The ethics of survivor research: Guidelines for the ethical conduct of research carried out by mental health service users and survivors. Joseph Rowntree Association. Available  here.

Alison Faulkner & Vicky Nicholls (2001) ‘Strategies for Living’, Journal of Integrated Care, Vol. 9 Iss 1 pp. 32 – 36. Available  here.

Dorothy Gould (2012) Service users’ experiences of recovery under the 2008 Care Programme Approach: A Reserach Study. Mental Health Foundation & NSUN. Available here.


SRN Publications

SRN Manifesto, Emma Ormerod and others (2018) Survivor Researcher Network: Mental health knowledge built by service users and survivors. NSUN (National Survivor User network)

Jacqui Lovell, Dina Poursanidou, Karen Machin, Stephen Jeffreys, Holly Dale (2020) ‘How can we survivor and thrive as survivor researchers?’ in McLaughlin, Beresford and others, eds, The Routledge handbook of service user involvement in human services research and education. Routledge.


Articles in academic journals

These are all open access unless stated.

Diana Rose, Sarah Carr & Peter Beresford (2018) ‘Widening cross-disciplinary research for mental health’: what is missing from the Research Councils UK mental health agenda? Disability & Society, DOI: 10.1080/09687599.2018.1423907. Available here.

Sarah Carr (2019) ‘I am not your nutter’: a personal reflection on commodification and comradeship in service user and survivor research, Disability & Society, DOI: 10.1080/09687599.2019.1608424. Available here (not open access).


Collected articles in books

Books with survivor researchers among the editors or with chapters written from a survivor or lived experience perspective. These may be available from libraries or to purchase.

Angela Sweeney, Peter Beresford, Alison Faulkner, Mary Nettle, & Diana Rose, editors (2009) This is Survivor Research. PCCS Books.

Jan Wallcraft, Beate Schrank & Michaela Amering, editors (2009) Handbook of Service User Involvement in Mental Health Research. Wiley-Blackwell.

Jasna Russo & Anela Sweeney, editors (2016) Searching for a Rose Garden: Challenging Psychiatry, Fostering Mad Studies. PCCS Books

Patsy Staddon, editor (2015) Mental Health service users in reserach: Critical socialogical perspectives. Policy Press.

Peter Beresford & Sarah Carr, editors (2012) Social Care, Service Users and User Involvement. Jessica Kingsley Publishers.

Helen Spandler, Jill Anderson & Bob Sapey, editors (2015) Madness, distress and the politics of disablement. Policy Press


Dr Jan Wallcraft

Jan Wallcraft, who passed away during 2020, played an important role in the development of the Survivor movement and Survivor Research. She was a survivor of the psychiatric system, a researcher and a mental health and political activist. We published some information about her and a list of some of her writings in our April 2020 bulletin. You can read a slightly updated version of this here.