The role of local area support and amenities in reducing inequalities in unmet need for care and improving access to social care support (CAPE 2.0). Lived experience advisory group – paid opportunity.
Survivor Researcher Network C.I.C. is working with London School of Economics (LSE) Care Policy and Evaluation Centre to recruit and facilitate a group of people to advise on this project who:
- are aged 65 or over and have care needs, or
- have personal experience of caring for someone aged 65 or over with care needs. (carers can be under 65 themselves as long as they are caring for someone aged 65 or older).
About the project
“Many older people in England do not get the support they need for their long-term mental or physical ill health, cognitive problems or disabilities. This varies across the country and by ethnicity, financial situation, and support need.
Our study looks at how local services and voluntary and community sector organisations can
- help people to get the care they need,
- be a source of care and support,
- reduce the need for care,
- and how this varies within and across areas.
We will also look at how this local support could be improved and how there could be fairer access to sources of care and support.
To answer these questions, we will use survey data from a large-scale scale survey collected very year and interviews with older people requiring care or their carers, and workshops with practitioners.
The study builds on our previous study which looked at older people’s housing and their care needs and care use (see https://www.sscr.nihr.ac.uk/projects/p191/).”
The project is funded by the National Institute of Health and Social Care Research (NIHR) School for Social Care Research (SSCR)
There will be a parallel advisory group of Bangladeshi community members for this project organised by a local community organisation.
The project leads are:
Lead Investigator – Nicola Brimblecombe (Care Policy and Evaluation Centre (CPEC), LSE.
Public Involvement leads – Karen Machin and Stephen Jeffreys (Survivor Researcher Network C.I.C. Directors)”
Who we are looking for
We are looking for eight people, living in England, who are either:
- Older people (aged 65 and older) with current care and support needs. Care and support needs can include needs relating to disability, physical health, mental health, sensory impairment, neurodivergence, learning disability, misuse of drugs or alcohol. You don’t necessarily need to be receiving any services.
- Or carers for older people (aged 65 or older) with the above care and support needs.
Advisory group members will need access to computer facilities and email for attending meetings and preparatory reading. The application form asks about any assistance and adjustments needed to facilitate this.
What will the project advisory group do
The Advisory Group will have five online meetings during the 25 month project to provide advice from experience on conduct of the project and comment on the findings.
The dates for the first two meetings are:
- Monday 2 June at 10.30 for one hour
- Monday 9 June at 10.30 for two hours
Apart from the first introductory meeting, there will be some reading needed to prepare for most meetings.
The project team are interested in hearing your expert advice, and will not be collecting personal information other than
- gender
- ethnicity
- type of geographical area (e.g. urban, rural) and region
- main disability or health condition
- age/age band
LSE policy on personal data can be viewed here.
Payment
We will make payments to group members from the project budget at £25 per hour for your time in attending and preparing for meetings plus £5 for each online meeting. So an £80 payment will be made for a two hour meeting with one hour allowed for preparation.
How to apply to join the advisory group
Survivor Researcher Network C.I.C. are organising recruitment for the advisory group.
If you would like to apply to join the group, please complete our online Expression of Interest form by the end of Monday 19 May.
The Study is aiming for a diverse group in relation to ethnicity, location, types of care need, gender, and age of person cared for, and the form contains questions to assist with this.
If you have any questions or need assistance with the form, please contact Stephen Jeffreys at stephen.jeffreys@survivorresearcher.net.
What we will do with information collected on your form
All the information that SRN collects from the application forms will be kept securely in accordance with our Privacy and data protection policy
We will use the information you give for selection to the group. For selection purposes we may share anonymised information in your application form with the study team.
For applicants not selected for the group, we will delete your personal information after we have informed you of the decision.
If you are selected for the group, we will keep your personal information until the end of this project (or until you withdraw), and then delete your personal information other than as required to process payment claims, and to contact you about further opportunities to be involved in this work.
The study team may ask advisory group members for personal information in accordance with their data protection statement, and email contact details may be shared with the LSE research team for purposes of this project.
0 Comments