Our next SRN Discussion and Support Group meeting is at 17.30 BST on Tuesday 20 May.
We have presentation at this meeting:
‘Expanded I poems’: a participatory data analysis and co-inquiry process, of Northumbria university’s ‘Public involvement and coproduction in research’ programme, led by people with lived experience of mental distress.
Presenters: Dr Jacqui Lovell, Natasha Downs, Katie Romney, Fiona Cammack
These meetings provide a space for people with lived experience of mental distress to discuss survivor research and the issues and barriers we face in getting involved in doing mental health research for ourselves.The meeting will include a peer support section of the meeting where you can bring research related issues of concern for support and discussion. Although our primary focus is often on mental health research in England, we also welcome researchers with lived experience of mental distress who are involved in other areas of research and survivor researchers from outside England or the UK.
Our meetings are via Zoom. You can register for this May meeting here.
Presenters:
Dr Jacqui Lovell is a survivor, a survivor researcher and a doctor of critical community psychology. Jacqui uses co-creative arts based approaches to participatory action research and the coproduction process in partnership with individuals and groups who experience intersectional discrimination (kyriarchy). Jacqui is one of five co-directors of the Survivor Research Network community interest company, based in the UK, whilst operating internationally. She also trains peer support workers [online] for With-You Consultancy and is a visiting lecturer on the ‘Public involvement and coproduction in research’ programme at Northumbria University. Jacqui has an interest in poetry in her capacity: as a performance poet; as a Mad woman, for its potential to cathartically release her thoughts and feelings; and as a survivor researcher, for its ability to reflect the lived experiences of people from minoritised groups and communities through the coproduction of ‘Expanded I poems’ (Lovell, 2017).
Natasha Downs is a Mad and neurodivergent woman based in Newcastle-upon-Tyne, England. She is a visiting scholar of Mad Studies (Northumbria University) and holds an MSc by Research in Japanese degree (Edinburgh University). Inspired by her lived experience of emotional distress and background in East Asian Studies, Natasha is interested in developing Mad and Critical Neurodiverse theory to enrich understanding of depicted emotions in Japanese historical fiction. Her previous work includes the piece ‘Best Pussy Disorder’ (Asylum 30.4, 2023) and the seminar series ‘Madness in Premodern and Early Cultures’ (Early Text Cultures, University of Oxford, 2023).
Katie Rumney’s interest in research comes from spending over half her life with mental and physical health disorders, and feeling unable to contribute in traditional workplaces. While searching for a way to feel productive and capable, Katie discovered PPI, and felt that she could use that space to make a difference to others experiencing similar feelings of isolation and distress. Through Public and Patient involvement (PPI) she has gained a new level of confidence, purpose and value. From working alongside top researchers in the field, to meeting/interviewing participants, to presenting at conferences and even attending university for the first time, Katie is constantly learning and growing. Katie’s passion lies in reviewing research proposals and giving feedback on PPI strategy, to really push the voice of the people with lived experience from the get go, and ensure people’s stories are integral to the world of research.
Fiona Cammack is an expert by experience based in Newcastle. She recently completed a course in Public Patient Involvement and Engagement at Northumbria university and is currently a PPIE member of a number of research projects, using her lived experience to influence and inform research in the ASCEnD clinical trial and AI Multiply (AIM), an AI in healthcare project. As a member of the AI Multiply project management team, she developed a particular interest in using creative methodologies to expand PPIE to include the voices of marginalised groups that have traditionally been missing from AI in healthcare research, collaborating with a local theatre company run by people with learning difficulties to create a forum theatre piece, bringing together researchers from across the AIM projects and people with lived experience to explore the barriers to meaningful participation in research.
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